Toronto Chapter

Huntington Society of Canada


If you need information on support groups or caregiver meetings please contact Rozi.

  • Rozalia (Rozi) Andrejas: HD Resource Centre Director in Toronto.
  • Phone: (905) 787-8359 Toll Free: 1-877- 573-7011
  • Email:

If you can’t get a hold of Rozi, feel free to contact the National Office.

  • Phone: 1.800.998.7398

To get involved or for more information on the Chapter:

Annie Vanexem, Manager, Chapter Development at 1-800-998-7398 ext. 127

Mailing address for donations: 

HSC Toronto chapter
c/o Huntington Society of Canada National Office
151 Frederick St.
Suite 400
Kitchener, ON
N2H 2M2

How to Volunteer 

Huntington Society of Canada Toronto Chapter – we are volunteers from the Greater Toronto Area who:

  • help people affected by Huntington disease (HD)
  • raise awareness of Huntington disease
  • raise funds for HD research and services for those affected by HD:  over $1,050,000 netted through events, proceeds of Amaryllis & raffle sales

The chapter, formed in 1997, is part of Huntington Society of Canada (HSC), charitable donation #  11896 5516 RR0001, a national network of volunteers and staff professionals.  Like the chapter facebook page.

How to help?  Plan, ask for donations, sell, volunteer & participate in these events & annual campaigns:

**Amaryllis – order now for Autumn delivery**  Original fundraiser of high-quality orange sovereign Amaryllis bulbs which bloom spectacularly.  Order starting early summer for Oct/Nov delivery.

Heroes Run for Huntington Disease:  5k/10k run, 5k walk – call 647.238.6294

Next Run for Huntington Disease: Sunday, June 24, 2018

Architectural Gems of Toronto Walk to End HDSpring-time walk in Toronto’s areas historical & architectural interest – created by Jim Wiswell.  

Next GEMS Walk: Sunday, April 29, 2018

Hockey Dream Getaway Raffle for HD.  Winners must be 18 years of age and resident of Ontario to win.

May is Huntington Disease Awareness Month: help us #LightItUp4HD

Create your own event – join TeamHD!  Raise funds when participating in any event in Canada such as a marathon, or create your own!  Call 1-800-998-7398 ext 127.

Special history

Toronto hosted the 2012 Huntington Society of Canada National Conference, where 27 recipients from across Canada received the Queen Elizabeth II Diamond Jubilee Medal for their significant contributions to the Society, the Huntington disease community & Canada, including Society co-founder, Ariel Walker.

Communications:  like the chapter’s facebook page   To submit anything to be communicated via the chapter’s website, newsletter, etc., call 647.238.6294.  A chapter newsletter is sent 3 times/year with Horizon, the Society’s national newsletter.  If you receive Horizon by email, click the Ontario link in the chapter newsletter list.

Charitable registration #:  11896 5516 RR0001. 

Mailing address for donations:  call 647.238.6294 (chapter President), if not reachable, send to HSC Toronto chapter c/o Huntington Society of Canada National Office – 151 Frederick St. #400, Kitchener, ON  N2H 2M2.